National  Health Information Center 

Health Information Resource Database

[Inclusion of an information resource in this database does not imply endorsement
by the U.S. Department of Health and Human Services.]

Children's PKU Network

Contact Information

3306 Bumann Rd
Encinitas, CA 92024

1-800-377-6677 (Voice - Toll-free),
858-756-0079 (Voice),
858-756-1059 (FAX),

Internet Resources


Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with newly diagnosed infants with PKU and other metabolic disorders. A referral service serves as a medium for sharing information on obtaining needed services. A Maternal PKU Express Pack is available to women with PKU. PKU is a rare metabolic disorder that affects approximately 1 in every 15,000 births in the United States. Although not curable, PKU is treatable by adherence to a strict diet, devoid of fats and aspartame.


Serial publication: Newsletter, quarterly--information on nutrition and diet, insurance coverage for PKU care, screening and other health programs related to PKU, and organizational news.


You may search for other related entries in the database under the following topics.


Updated contact info, MP


Date Entered: 6/1/1998
Date Edited: 3/5/2013
Date Revised: 6/19/2006 12:48:53 PM
Health Referral Number: HR0782
Accession Number: DP91A0109

back buttonNHIC Home Page