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Spina Bifida Association of America

Contact Information

Larry Pencak, Executive Director
4590 MacArthur Boulevard, NW
Suite 250
Washington, DC 20007-4226

1-800-621-3141 (Voice - Toll-free)
202-944-3285 (Voice)
202-944-3295 (FAX)

Internet Resources


The mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year.


SBA publishes a number of informational brochures and reports about spina bifida for both children and adults and educational videotape programs for parents and health professionals. Serial publication: Insights (newsletter), bimonthly--news and discussions on living with spina bifida.


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Date Entered: 5/1/1998
Date Edited: 12/24/2012
Date Revised: 7/31/2012
Health Referral Number: HR0421
Accession Number: DP91A0366

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