National Health Information Center 

Health Information Resource Database

[Inclusion of an information resource in this database does not imply endorsement
by the U.S. Department of Health and Human Services.]

The Beckwith-Wiedemann Family Forum

Contact Information

Susan Fettes
2711 Colony Road
Ann Arbor, MI 48104

800-837-BWSN (2976) (Voice - Toll-free), Parent Hotline
734-973-0263 (Voice),
734-973-9721 (FAX),

Internet Resources

Abstract

Beckwith-Wiedemann Syndrome (BWS) is a congenital growth related disorder. There are roughly thirty characteristics which can be associated with BWS. Most often seen are enlarged tongue, umbilical hernia, and increased birthweight. These children are also at risk of developing hypoglycemia at birth and various types of tumors. The Beckwith-Wiedemann Support Network (BWSN) was established in 1989 to provide information and peer support to families and individuals affected by BWS, and to facilitate the exchange of information between parents and interested health professionals.

Publications

The BWSN publishes a newsletter 3 times yearly for its members, and distributes an informational brochure about Beckwith-Wiedemann syndrome and treatment guidelines.

Keywords

You may search for other related entries in the database under the following topics.

Notes

3/13/07 Unable to confirm info, 3 attempts to reach organization failed (e-mail, fax & mail returned). Sent a second e-mail on 3-01-07 with no response. (RV)

Audit

Date Entered: 9/1/1997
Date Edited: 6/16/2009
Date Revised: 10/22/2006 3:24:52 PM
Health Referral Number: HR2420
Accession Number: DP91A0951
back buttonNHIC Home Page