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Association for Glycogen Storage Disease


Contact Information

P.O. Box 896
Durant, IA 52747

563-514-4022 (Voice),
563-514-4022 (FAX),

Internet Resources


Abstract

The Association for Glycogen Storage Disease (AGSD) is a nonprofit support group, established in 1979, for families and persons affected by glycogen storage disease (GSD). AGSD was organized to promote and protect the interests of all persons affected by GSD; to coordinate scientific, educational, and charitable activities related to GSD; to act as a clearinghouse on GSD-related matters; and to publish and distribute material to doctors and other interested persons. AGSD holds a yearly conference focusing on the latest research, care, and treatments available to affected persons.

Publications

AGSD publishes a handbook about glycogen storage disease. The handbook may be purchased on line at http://www.agsdus.org/html/agsdstore.html.

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Notes

11.16.12. updated contact info--DK

Audit

Date Entered: 8/1/1997
Date Edited: 2/20/2013
Date Revised: 8/7/2006 10:54:21 AM
Health Referral Number: HR2228
Accession Number: DP91A1043

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