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Children's PKU Network


Contact Information

3306 Bumann Rd
Encinitas, CA 92024

1-800-377-6677 (Voice - Toll-free),
858-756-0079 (Voice),
858-756-1059 (FAX),

Internet Resources


Abstract

Children's PKU Network is a nonprofit agency founded in 1991 by the parents of a child diagnosed with PKU (Phenylketonuria). The agency offers support through various programs to assist families with newly diagnosed infants with PKU and other metabolic disorders. A referral service serves as a medium for sharing information on obtaining needed services. A Maternal PKU Express Pack is available to women with PKU. PKU is a rare metabolic disorder that affects approximately 1 in every 15,000 births in the United States. Although not curable, PKU is treatable by adherence to a strict diet, devoid of fats and aspartame.

Publications

Serial publication: Newsletter, quarterly--information on nutrition and diet, insurance coverage for PKU care, screening and other health programs related to PKU, and organizational news.

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Notes

Updated contact info, MP

Audit

Date Entered: 6/1/1998
Date Edited: 3/5/2013
Date Revised: 6/19/2006 12:48:53 PM
Health Referral Number: HR0782
Accession Number: DP91A0109

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