National  Health Information Center 

Health Information Resource Database

[Inclusion of an information resource in this database does not imply endorsement
by the U.S. Department of Health and Human Services.]


Osteogenesis Imperfecta Foundation, Inc.


Contact Information

Executive Director
804 West Diamond Avenue, Suite 210
Gaithersburg, MD 20878

1-800-981-2663 (Voice - Toll-free)
301-947-0083 (Voice)
301-947-0456 (FAX)

Internet Resources


Abstract

The Osteogenesis Imperfecta Foundation is a voluntary national health organization dedicated to improving the quality of life for individuals affected by OI through education, awareness, mutual support and research into improved treatments and an eventual cure. Resources and programs include a quarterly newsletter, a physician information service, written literature, informative videos, a pen pal program for children, national conferences, and local support groups. Research grants are awarded each year. Osteogenesis imperfecta is a highly variable, inherited disorder whose main feature is fragile bones, which fracture easily. Other symptoms may include blue sclerae, hearing loss, loose joints, lax ligaments and short stature. Many individuals with OI have only some- not all - of the clinical features.

Publications

The OI Foundation publishes books, pamphlets and fact sheets that provide information about osteogenesis impertecta for adults and children who have the disorder, their families, medical professionals and other members of the community. Videos are also available. A quarterly newsletter, "Breakthrough," provides advice on coping with OI and news on developments in research and treatment. Additional resources are available through the OI Foundation's website.

Keywords

You may search for other related entries in the database under the following topics.


Notes


Audit

Date Entered: 6/1/1998
Date Edited: 11/30/2012
Date Revised: 9/27/2011
Health Referral Number: HR0582
Accession Number: DP91A0311

back buttonNHIC Home Page